tag:blogger.com,1999:blog-3681219456101505746.post2271684682164632939..comments2023-09-09T03:06:05.730-07:00Comments on blessed by Leo: Where do we begin?the Familyhttp://www.blogger.com/profile/13365899377819815539noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3681219456101505746.post-16024358392556481922012-07-25T20:44:48.661-07:002012-07-25T20:44:48.661-07:00We will have to see about blogging about Reid'...We will have to see about blogging about Reid's disorder, maybe. We just found out last Tuesday about it after he had an MRI for migraines. Turns out he has a Chairi 1 malformation, a totally unexpected finding considering he had a normal MRI in 2009. I've been heartbroken, he doesn't have an appt. with the neurosurgeon until September, that is the soonest we can get in. So I am trying to educate myself & prepare for our visit & have all my questions ready. I'm trying to be patient & wait for our appt. but I really want all the answers right now. It's a scary thing, I am just going to put it out of my mind as best I can until then & pray.Anonymoushttps://www.blogger.com/profile/11826598022366897529noreply@blogger.comtag:blogger.com,1999:blog-3681219456101505746.post-88901593077117308862012-07-25T20:14:50.538-07:002012-07-25T20:14:50.538-07:00Thanks Nicole! I would feel blessed if this blog h...Thanks Nicole! I would feel blessed if this blog helped someone else. It would bring me joy to help ease someone else's fear about raising a baby with DS, for sure. It's therapeutic for me, and it helps us keep family informed about how Leo's doing without long winded phone calls. If you decide to blog about Reid's diagnosis please let me know - I'd love to read it too. Love you and your sweet boy!the Familyhttps://www.blogger.com/profile/13365899377819815539noreply@blogger.comtag:blogger.com,1999:blog-3681219456101505746.post-48426042247947883042012-07-24T19:56:27.230-07:002012-07-24T19:56:27.230-07:00I truly think you writing this blog is a wonderful...I truly think you writing this blog is a wonderful thing for others. You may not realize how helpful it is. I have been reading other blogs today to inform myself about something Reid has recently been diagnosed with & reading other parents blogs & their child's journey is so informing & helpful. I hope you help may other families like others have helped you. Leo is precious & thank you for sharing.<br />Love, NicoleAnonymoushttps://www.blogger.com/profile/11826598022366897529noreply@blogger.com